This is not a blog, but rather a promise to a friend who has now lived in the heavens for almost five years.
She told me to write, and so now I am.
My name is Jess, and I am a 22 year old Australian woman living and loving with Marfan Syndrome. I am a Psychology student, a Buddhist, Mum to a Golden Retriever, daughter to the original Griswalds and everything else in between. I show minimal cooking talent and my joints go out more often than I do. Life with Marfan’s can be short; But I’m not.
You can learn more about Marfan Syndrome here; http://www.marfan.org